Culture and End of Life Care: A Scoping Exercise in Seven European Countries
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{"title"=>"Culture and end of life care: A scoping exercise in seven European countries", "type"=>"journal", "authors"=>[{"first_name"=>"Marjolein", "last_name"=>"Gysels", "scopus_author_id"=>"24343441400"}, {"first_name"=>"Natalie", "last_name"=>"Evans", "scopus_author_id"=>"35746153800"}, {"first_name"=>"Arantza", "last_name"=>"Meñaca", "scopus_author_id"=>"38862404200"}, {"first_name"=>"Erin", "last_name"=>"Andrew", "scopus_author_id"=>"42161097000"}, {"first_name"=>"Franco", "last_name"=>"Toscani", "scopus_author_id"=>"6701514681"}, {"first_name"=>"Sylvia", "last_name"=>"Finetti", "scopus_author_id"=>"37029466500"}, {"first_name"=>"H. Roeline", "last_name"=>"Pasman", "scopus_author_id"=>"7003939528"}, {"first_name"=>"Irene", "last_name"=>"Higginson", "scopus_author_id"=>"7006457362"}, {"first_name"=>"Richard", "last_name"=>"Harding", "scopus_author_id"=>"35490718500"}, {"first_name"=>"Robert", "last_name"=>"Pool", "scopus_author_id"=>"57201190838"}], "year"=>2012, "source"=>"PLoS ONE", "identifiers"=>{"pui"=>"364556694", "issn"=>"19326203", "isbn"=>"1932-6203 (Electronic)\\r1932-6203 (Linking)", "doi"=>"10.1371/journal.pone.0034188", "scopus"=>"2-s2.0-84859222353", "pmid"=>"22509278", "sgr"=>"84859222353"}, "id"=>"5b248ee5-2a5d-356a-9fdc-e3a1e325732a", "abstract"=>"AIM: Culture is becoming increasingly important in relation to end of life (EoL) care in a context of globalization, migration and European integration. We explore and compare socio-cultural issues that shape EoL care in seven European countries and critically appraise the existing research evidence on cultural issues in EoL care generated in the different countries.\\n\\nMETHODS: We scoped the literature for Germany, Norway, Belgium, The Netherlands, Spain, Italy and Portugal, carrying out electronic searches in 16 international and country-specific databases and handsearches in 17 journals, bibliographies of relevant papers and webpages. We analysed the literature which was unearthed, in its entirety and by type (reviews, original studies, opinion pieces) and conducted quantitative analyses for each country and across countries. Qualitative techniques generated themes and sub-themes.\\n\\nRESULTS: A total of 868 papers were reviewed. The following themes facilitated cross-country comparison: setting, caregivers, communication, medical EoL decisions, minority ethnic groups, and knowledge, attitudes and values of death and care. The frequencies of themes varied considerably between countries. Sub-themes reflected issues characteristic for specific countries (e.g. culture-specific disclosure in the southern European countries). The work from the seven European countries concentrates on cultural traditions and identities, and there was almost no evidence on ethnic minorities.\\n\\nCONCLUSION: This scoping review is the first comparative exploration of the cultural differences in the understanding of EoL care in these countries. The diverse body of evidence that was identified on socio-cultural issues in EoL care, reflects clearly distinguishable national cultures of EoL care, with differences in meaning, priorities, and expertise in each country. The diverse ways that EoL care is understood and practised forms a necessary part of what constitutes best evidence for the improvement of EoL care in the future.", "link"=>"http://www.mendeley.com/research/culture-end-life-care-scoping-exercise-seven-european-countries", "reader_count"=>78, "reader_count_by_academic_status"=>{"Unspecified"=>5, "Professor > Associate Professor"=>2, "Researcher"=>14, "Student > Doctoral Student"=>5, "Student > Ph. D. Student"=>23, "Student > Postgraduate"=>4, "Other"=>9, "Student > Master"=>10, "Student > Bachelor"=>2, "Lecturer"=>1, "Lecturer > Senior Lecturer"=>1, "Professor"=>2}, "reader_count_by_user_role"=>{"Unspecified"=>5, "Professor > Associate Professor"=>2, "Researcher"=>14, "Student > Doctoral Student"=>5, "Student > Ph. D. Student"=>23, "Student > Postgraduate"=>4, "Other"=>9, "Student > Master"=>10, "Student > Bachelor"=>2, "Lecturer"=>1, "Lecturer > Senior Lecturer"=>1, "Professor"=>2}, "reader_count_by_subject_area"=>{"Unspecified"=>6, "Nursing and Health Professions"=>8, "Biochemistry, Genetics and Molecular Biology"=>1, "Medicine and Dentistry"=>36, "Agricultural and Biological Sciences"=>1, "Philosophy"=>2, "Arts and Humanities"=>1, "Physics and Astronomy"=>1, "Psychology"=>5, "Social Sciences"=>15, "Computer Science"=>1, "Economics, Econometrics and Finance"=>1}, "reader_count_by_subdiscipline"=>{"Medicine and Dentistry"=>{"Medicine and Dentistry"=>36}, "Social Sciences"=>{"Social Sciences"=>15}, "Physics and Astronomy"=>{"Physics and Astronomy"=>1}, "Psychology"=>{"Psychology"=>5}, "Economics, Econometrics and Finance"=>{"Economics, Econometrics and Finance"=>1}, "Agricultural and Biological Sciences"=>{"Agricultural and Biological Sciences"=>1}, "Computer Science"=>{"Computer Science"=>1}, "Nursing and Health Professions"=>{"Nursing and Health Professions"=>8}, "Biochemistry, Genetics and Molecular Biology"=>{"Biochemistry, Genetics and Molecular Biology"=>1}, "Unspecified"=>{"Unspecified"=>6}, "Arts and Humanities"=>{"Arts and Humanities"=>1}, "Philosophy"=>{"Philosophy"=>2}}, "reader_count_by_country"=>{"Canada"=>1, "Netherlands"=>1, "South Africa"=>2, "United Kingdom"=>1, "Spain"=>2}, "group_count"=>3}

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  • {"files"=>["https://ndownloader.figshare.com/files/338045"], "description"=>"<div><h3>Aim</h3><p>Culture is becoming increasingly important in relation to end of life (EoL) care in a context of globalization, migration and European integration. We explore and compare socio-cultural issues that shape EoL care in seven European countries and critically appraise the existing research evidence on cultural issues in EoL care generated in the different countries.</p> <h3>Methods</h3><p>We scoped the literature for Germany, Norway, Belgium, the Netherlands, Spain, Italy and Portugal, carrying out electronic searches in 16 international and country-specific databases and handsearches in 17 journals, bibliographies of relevant papers and webpages. We analysed the literature which was unearthed, in its entirety and by type (reviews, original studies, opinion pieces) and conducted quantitative analyses for each country and across countries. Qualitative techniques generated themes and sub-themes.</p> <h3>Results</h3><p>A total of 868 papers were reviewed. The following themes facilitated cross-country comparison: setting, caregivers, communication, medical EoL decisions, minority ethnic groups, and knowledge, attitudes and values of death and care. The frequencies of themes varied considerably between countries. Sub-themes reflected issues characteristic for specific countries (e.g. culture-specific disclosure in the southern European countries). The work from the seven European countries concentrates on cultural traditions and identities, and there was almost no evidence on ethnic minorities.</p> <h3>Conclusion</h3><p>This scoping review is the first comparative exploration of the cultural differences in the understanding of EoL care in these countries. The diverse body of evidence that was identified on socio-cultural issues in EoL care, reflects clearly distinguishable national cultures of EoL care, with differences in meaning, priorities, and expertise in each country. The diverse ways that EoL care is understood and practised forms a necessary part of what constitutes best evidence for the improvement of EoL care in the future.</p> </div>", "links"=>[], "tags"=>["scoping", "european", "countries"], "article_id"=>126812, "categories"=>["Medicine", "Biotechnology"], "users"=>["Marjolein Gysels", "Natalie Evans", "Arantza Meñaca", "Erin Andrew", "Franco Toscani", "Sylvia Finetti", "H. Roeline Pasman", "Irene Higginson", "Richard Harding", "Robert Pool"], "doi"=>"https://dx.doi.org/10.1371/journal.pone.0034188", "stats"=>{"downloads"=>0, "page_views"=>5, "likes"=>0}, "figshare_url"=>"https://figshare.com/articles/Culture_and_End_of_Life_Care_A_Scoping_Exercise_in_Seven_European_Countries/126812", "title"=>"Culture and End of Life Care: A Scoping Exercise in Seven European Countries", "pos_in_sequence"=>0, "defined_type"=>3, "published_date"=>"2012-04-03 01:53:32"}
  • {"files"=>["https://ndownloader.figshare.com/files/659031"], "description"=>"<p>Journals hand searched.</p>", "links"=>[], "tags"=>["public health and epidemiology", "Non-clinical medicine"], "article_id"=>329510, "categories"=>["Medicine", "Biotechnology"], "users"=>["Marjolein Gysels", "Natalie Evans", "Arantza Meñaca", "Erin Andrew", "Franco Toscani", "Sylvia Finetti", "H. Roeline Pasman", "Irene Higginson", "Richard Harding", "Robert Pool"], "doi"=>"https://dx.doi.org/10.1371/journal.pone.0034188.t001", "stats"=>{"downloads"=>1, "page_views"=>7, "likes"=>0}, "figshare_url"=>"https://figshare.com/articles/_Journals_hand_searched_/329510", "title"=>"Journals hand searched.", "pos_in_sequence"=>0, "defined_type"=>3, "published_date"=>"2012-04-03 02:38:30"}
  • {"files"=>["https://ndownloader.figshare.com/files/658959"], "description"=>"<p>Additional databases by country.</p>", "links"=>[], "tags"=>["databases"], "article_id"=>329443, "categories"=>["Medicine", "Biotechnology"], "users"=>["Marjolein Gysels", "Natalie Evans", "Arantza Meñaca", "Erin Andrew", "Franco Toscani", "Sylvia Finetti", "H. Roeline Pasman", "Irene Higginson", "Richard Harding", "Robert Pool"], "doi"=>"https://dx.doi.org/10.1371/journal.pone.0034188.t002", "stats"=>{"downloads"=>1, "page_views"=>0, "likes"=>0}, "figshare_url"=>"https://figshare.com/articles/_Additional_databases_by_country_/329443", "title"=>"Additional databases by country.", "pos_in_sequence"=>0, "defined_type"=>3, "published_date"=>"2012-04-03 02:37:23"}

PMC Usage Stats | Further Information

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Relative Metric

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