Patient Organizations’ Funding from Pharmaceutical Companies: Is Disclosure Clear, Complete and Accessible to the Public? An Italian Survey
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Figshare

  • {"files"=>["https://ndownloader.figshare.com/files/640984"], "description"=>"<p>Description of drug companies included in the survey: headquarter, annual revenue (2009) for all the drug companies and the Italian ones (mean and range).</p>", "links"=>[], "tags"=>["details", "17", "pharmaceutical"], "article_id"=>311474, "categories"=>["Medicine", "Pharmacology"], "users"=>["Cinzia Colombo", "Paola Mosconi", "Walter Villani", "Silvio Garattini"], "doi"=>"https://dx.doi.org/10.1371/journal.pone.0034974.t001", "stats"=>{"downloads"=>1, "page_views"=>4, "likes"=>0}, "figshare_url"=>"https://figshare.com/articles/_Main_details_of_the_17_pharmaceutical_companies_/311474", "title"=>"Main details of the 17 pharmaceutical companies.", "pos_in_sequence"=>0, "defined_type"=>3, "published_date"=>"2012-05-09 00:24:34"}
  • {"files"=>["https://ndownloader.figshare.com/files/641019"], "description"=>"*<p>organizations not included in other categories: e.g. growth hormone deficiency, psoriasis, inflammatory bowel disease, osteoporosis, prevention of blindness.</p>**<p>reference varies among organizations: some describe the activities funded in detail, others only mention them. Some report this information only in brochures of events or activities.</p><p>°percentages refer to the organizations reporting funded activities. More than one answer was possible.</p><p>The transparency of patient and consumer groups’ websites was assessed in terms of: disclosure of drug companies providing funds, amount of funds, activities funded; accessibility of sponsorship information; availability of a code of conduct about sponsorship; links to drug companies’ websites; presence of banner advertisings; clear separation of marketing content; availability of a financial report.</p><p>Disclosure information are reported for all the groups and by disease of interest.</p>", "links"=>[], "tags"=>["157"], "article_id"=>311512, "categories"=>["Medicine", "Pharmacology"], "users"=>["Cinzia Colombo", "Paola Mosconi", "Walter Villani", "Silvio Garattini"], "doi"=>"https://dx.doi.org/10.1371/journal.pone.0034974.t003", "stats"=>{"downloads"=>0, "page_views"=>2, "likes"=>0}, "figshare_url"=>"https://figshare.com/articles/_Transparency_of_157_patient_and_consumer_groups_8217_websites_/311512", "title"=>"Transparency of 157 patient and consumer groups’ websites.", "pos_in_sequence"=>0, "defined_type"=>3, "published_date"=>"2012-05-09 00:25:12"}
  • {"files"=>["https://ndownloader.figshare.com/files/641058"], "description"=>"*<p>federations or coalitions (comprising many organizations).</p>**<p>for single organizations the number of sections (local units) is reported if available on the website, otherwise the number of volunteers/individuals is given.</p>∧<p>organizations not included in other categories: e.g. growth hormone deficiency, psoriasis, inflammatory bowel disease, osteoporosis, prevention of blindness.</p><p>Description of patient and consumer groups included in the survey: headquarter, main area of activities (going from the larger areas – i.e. regions – to the smaller ones – i.e. single cities or municipality), age (mean and range<b>),</b> number of members (mean and range) classified as: number of groups (for coalitions or federations), number of sections or local units (for single organizations), number of individuals (for single organizations); disease of interest.</p>", "links"=>[], "tags"=>["details", "157", "patients", "consumers"], "article_id"=>311548, "categories"=>["Medicine", "Pharmacology"], "users"=>["Cinzia Colombo", "Paola Mosconi", "Walter Villani", "Silvio Garattini"], "doi"=>"https://dx.doi.org/10.1371/journal.pone.0034974.t002", "stats"=>{"downloads"=>0, "page_views"=>3, "likes"=>0}, "figshare_url"=>"https://figshare.com/articles/_Main_details_of_157_patients_and_consumers_groups_/311548", "title"=>"Main details of 157 patients and consumers groups.", "pos_in_sequence"=>0, "defined_type"=>3, "published_date"=>"2012-05-09 00:25:48"}
  • {"files"=>["https://ndownloader.figshare.com/files/640953"], "description"=>"∧<p>March 2010.</p>*<p>Reference to the activities funded varied among drug companies, from detailed description to generic mention of the type of activity.</p>**<p>Percentages refer to the drug companies reporting patient and consumer organizations funded.</p><p>The transparency of drug companies’ websites was assessed in terms of: disclosure of patient and consumer groups funded, amount of funds, activities funded; accessibility of sponsorship information; date of update of sponsorship; links to websites of funded patient and consumer groups; availability of a code of conduct on the relationships with patient and consumer groups; different sponsorships information between the international and the Italian website of the drug company.</p><p>According to the patient groups’ websites, each of the selected drug companies supported at least one of the patient or consumer groups included in the survey (one through its foundation).</p>", "links"=>[], "tags"=>["17", "pharmaceutical", "websites", "providing", "funds"], "article_id"=>311435, "categories"=>["Medicine", "Pharmacology"], "users"=>["Cinzia Colombo", "Paola Mosconi", "Walter Villani", "Silvio Garattini"], "doi"=>"https://dx.doi.org/10.1371/journal.pone.0034974.t004", "stats"=>{"downloads"=>1, "page_views"=>17, "likes"=>0}, "figshare_url"=>"https://figshare.com/articles/_Disclosure_information_on_17_pharmaceutical_companies_8217_websites_providing_funds_to_patient_and_consumer_organizations_/311435", "title"=>"Disclosure information on 17 pharmaceutical companies’ websites providing funds to patient and consumer organizations.", "pos_in_sequence"=>0, "defined_type"=>3, "published_date"=>"2012-05-09 00:23:55"}
  • {"files"=>["https://ndownloader.figshare.com/files/330603", "https://ndownloader.figshare.com/files/330654", "https://ndownloader.figshare.com/files/330706"], "description"=>"<div><h3>Background</h3><p>Many patients’ and consumers’ organizations accept drug industry funding to support their activities. As drug companies and patient groups move closer, disclosure become essential for transparency, and the internet could be a useful means of making sponsorship information accessible to the public. This survey aims to assess the transparency of a large group of Italian patient and consumer groups and a group of pharmaceutical companies, focusing on their websites.</p> <h3>Methodology/Principal Findings</h3><p>Patient and consumer groups were selected from those stated to be sponsored by a group of pharmaceutical companies on their websites. The websites were examined using two forms with principal (name of drug companies providing funds, amount of funding) and secondary indicators of transparency (section where sponsors are disclosed, update of sponsorship). Principal indicators were applied independently by two reviewers to the patient and consumer groups’ websites. Discordances were solved by discussion. One hundred fifty-seven Italian patient and consumer groups and 17 drug companies were considered. Thirteen drug companies (76%) named at least one group funded, on their Italian websites. Of these, four (31%) indicated the activities sponsored and two (15%) the amount of funding. Of the 157 patient and consumer groups, 46 (29%) named at least one pharmaceutical company as providing funds. Three (6%) reported the amount of funding, 25 (54%) the activities funded, none the proportion of income derived from drug companies. Among the groups naming pharmaceutical company sponsors, 15 (33%) declared them in a dedicated section, five (11%) on the home page, the others in the financial report or other sections.</p> <h3>Conclusions/Significance</h3><p>Disclosure of funds is scarce on Italian patient and consumer groups’ websites. The levels of transparency need to be improved. Disclosure of patient and consumer groups provided with funds is frequent on Italian pharmaceutical companies’ websites, but information are often not complete.</p> </div>", "links"=>[], "tags"=>["pharmaceutical", "disclosure", "italian"], "article_id"=>125292, "categories"=>["Medicine", "Pharmacology"], "users"=>["Cinzia Colombo", "Paola Mosconi", "Walter Villani", "Silvio Garattini"], "doi"=>["https://dx.doi.org/10.1371/journal.pone.0034974.s001", "https://dx.doi.org/10.1371/journal.pone.0034974.s002", "https://dx.doi.org/10.1371/journal.pone.0034974.s003"], "stats"=>{"downloads"=>7, "page_views"=>6, "likes"=>0}, "figshare_url"=>"https://figshare.com/articles/Patient_Organizations_Funding_from_Pharmaceutical_Companies_Is_Disclosure_Clear_Complete_and_Accessible_to_the_Public_An_Italian_Survey/125292", "title"=>"Patient Organizations’ Funding from Pharmaceutical Companies: Is Disclosure Clear, Complete and Accessible to the Public? An Italian Survey", "pos_in_sequence"=>0, "defined_type"=>4, "published_date"=>"2012-05-09 01:28:12"}
  • {"files"=>["https://ndownloader.figshare.com/files/640869"], "description"=>"<p>The drug companies were selected among the top fifteen global corporations for sales in 2009, adding a group of Italian companies important on the Italian market. Their websites were searched for listings of patient and consumer groups funded. Groups dealing only with social services and strictly related to healthcare professionals or hospitals were excluded. The websites of selected patient and consumer groups were searched on Google. If the website was not found, the group was excluded from the survey. <b><sup>∧</sup></b> Additional information of groups with no website were sought by mail. * 76 groups not responding to the inclusion criteria: 33 dealing with social services or supporting sports or social activities. 38 scientific organizations, or dedicated to fundraising for medical research, or hospital department, or mainly composed of healthcare operators. 5 groups based in countries other than Italy (listed among the Italian organizations).</p>", "links"=>[], "tags"=>["pharmacology", "Non-clinical medicine"], "article_id"=>311357, "categories"=>["Medicine", "Pharmacology"], "users"=>["Cinzia Colombo", "Paola Mosconi", "Walter Villani", "Silvio Garattini"], "doi"=>"https://dx.doi.org/10.1371/journal.pone.0034974.g001", "stats"=>{"downloads"=>6, "page_views"=>9, "likes"=>0}, "figshare_url"=>"https://figshare.com/articles/_Flow_chart_/311357", "title"=>"Flow chart.", "pos_in_sequence"=>0, "defined_type"=>1, "published_date"=>"2012-05-09 00:22:37"}

PMC Usage Stats | Further Information

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Relative Metric

{"start_date"=>"2012-01-01T00:00:00Z", "end_date"=>"2012-12-31T00:00:00Z", "subject_areas"=>[{"subject_area"=>"/Medicine and health sciences", "average_usage"=>[312, 547, 668, 769, 861, 953, 1046, 1135, 1224, 1307, 1388, 1464, 1536, 1606, 1676, 1744, 1812, 1882, 1954, 2020, 2089, 2155, 2218, 2282, 2344]}, {"subject_area"=>"/Medicine and health sciences/Health care", "average_usage"=>[335, 575, 699, 804, 900, 994, 1119, 1215, 1317, 1408, 1509, 1583, 1664, 1732, 1802, 1873, 1945, 2020, 2104, 2190, 2259, 2325, 2400, 2463, 2548]}, {"subject_area"=>"/Medicine and health sciences/Pharmacology", "average_usage"=>[314, 554, 687, 796, 891, 983, 1075, 1170, 1261, 1340, 1422, 1504, 1574, 1647, 1715, 1786, 1848, 1919, 1990, 2053, 2115, 2197, 2258, 2333, 2395]}, {"subject_area"=>"/Science policy", "average_usage"=>[1132, 1926, 2225, 2366, 2506, 2616, 2752, 2852, 2954, 3059, 3161, 3236, 3293, 3437, 3525, 3654, 3739, 3858, 3948, 4074, 4297, 4318, 4327, 4398, 4486]}]}
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