Psychometric Properties of a Generic, Patient-Centred Palliative Care Outcome Measure of Symptom Burden for People with Progressive Long Term Neurological Conditions
Publication Date
October 25, 2016
Journal
PLOS ONE
Authors
Wei Gao, Vincent Crosby, Andrew Wilcock, Rachael Burman, et al
Volume
11
Issue
10
Pages
e0165379
DOI
https://dx.plos.org/10.1371/journal.pone.0165379
Publisher URL
http://journals.plos.org/plosone/article?id=10.1371%2Fjournal.pone.0165379
Scopus
84992317011
Mendeley
http://www.mendeley.com/research/psychometric-properties-generic-patientcentred-palliative-care-outcome-measure-symptom-burden-people
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Mendeley | Further Information

{"title"=>"Psychometric properties of a generic, patient-centred palliative care outcome measure of symptom burden for people with progressive long term neurological conditions", "type"=>"journal", "authors"=>[{"first_name"=>"Wei", "last_name"=>"Gao", "scopus_author_id"=>"37052008600"}, {"first_name"=>"Vincent", "last_name"=>"Crosby", "scopus_author_id"=>"6701411566"}, {"first_name"=>"Andrew", "last_name"=>"Wilcock", "scopus_author_id"=>"7005251177"}, {"first_name"=>"Rachael", "last_name"=>"Burman", "scopus_author_id"=>"14830276200"}, {"first_name"=>"Eli", "last_name"=>"Silber", "scopus_author_id"=>"7004526533"}, {"first_name"=>"Nilay", "last_name"=>"Hepgul", "scopus_author_id"=>"34869590400"}, {"first_name"=>"K. Ray", "last_name"=>"Chaudhuri", "scopus_author_id"=>"7102516281"}, {"first_name"=>"Irene J.", "last_name"=>"Higginson", "scopus_author_id"=>"7006457362"}], "year"=>2016, "source"=>"PLoS ONE", "identifiers"=>{"issn"=>"19326203", "scopus"=>"2-s2.0-84992317011", "sgr"=>"84992317011", "pui"=>"612904453", "isbn"=>"1932-6203", "pmid"=>"27780237", "doi"=>"10.1371/journal.pone.0165379"}, "id"=>"6ac00252-b877-3456-8afb-aec9b88ef01e", "abstract"=>"BACKGROUND: There is no standard palliative care outcome measure for people with progressive long term neurological conditions (LTNC). This study aims to determine the psychometric properties of a new 8-item palliative care outcome scale of symptom burden (IPOS Neuro-S8) in this population. DATA AND METHODS: Data were merged from a Phase II palliative care intervention study in multiple sclerosis (MS) and a longitudinal observational study in idiopathic Parkinson's disease (IPD), multiple system atrophy (MSA) and progressive supranuclear palsy (PSP). The IPOS Neuro-S8 was assessed for its data quality, score distribution, ceiling and floor effects, reliability, factor structure, convergent and discriminant validity, concurrent validity with generic (Palliative care Outcome Scale) and condition specific measures (Multiple Sclerosis Impact Scale; Non-motor Symptoms Questionnaire; Parkinson's Disease Questionnaire), responsiveness and minimally clinically important difference. RESULTS: Of the 134 participants, MS patients had a mean Extended Disability Status Scale score 7.8 (SD = 1.0), patients with an IPD, MSA or PSP were in Hoehn & Yahr stage 3-5. The IPOS Neuro-S8 had high data quality (2% missing), mean score 8 (SD = 5; range 0-32), no ceiling effects, borderline floor effects, good internal consistency (Cronbach's alpha = 0.7) and moderate test-retest reliability (intraclass coefficient = 0.6). The results supported a moderately correlated two-factor structure (Pearson's r = 0.5). It was moderately correlated with generic and condition specific measures (Pearson's r: 0.5-0.6). There was some evidence for discriminant validity in IPD, MSA and PSP (p = 0.020), and for good responsiveness and longitudinal construct validity. CONCLUSIONS: IPOS Neuro-S8 shows acceptable to promising psychometric properties in common forms of progressive LTNCs. Future work needs to confirm these findings with larger samples and its usefulness in wider disease groups.", "link"=>"http://www.mendeley.com/research/psychometric-properties-generic-patientcentred-palliative-care-outcome-measure-symptom-burden-people", "reader_count"=>21, "reader_count_by_academic_status"=>{"Unspecified"=>3, "Professor > Associate Professor"=>1, "Librarian"=>1, "Researcher"=>3, "Student > Ph. D. Student"=>6, "Student > Master"=>2, "Other"=>1, "Student > Bachelor"=>3, "Lecturer"=>1}, "reader_count_by_user_role"=>{"Unspecified"=>3, "Professor > Associate Professor"=>1, "Librarian"=>1, "Researcher"=>3, "Student > Ph. D. Student"=>6, "Student > Master"=>2, "Other"=>1, "Student > Bachelor"=>3, "Lecturer"=>1}, "reader_count_by_subject_area"=>{"Unspecified"=>3, "Nursing and Health Professions"=>6, "Medicine and Dentistry"=>6, "Social Sciences"=>5, "Computer Science"=>1}, "reader_count_by_subdiscipline"=>{"Medicine and Dentistry"=>{"Medicine and Dentistry"=>6}, "Social Sciences"=>{"Social Sciences"=>5}, "Computer Science"=>{"Computer Science"=>1}, "Nursing and Health Professions"=>{"Nursing and Health Professions"=>6}, "Unspecified"=>{"Unspecified"=>3}}, "reader_count_by_country"=>{"United Kingdom"=>1}, "group_count"=>3}

Scopus | Further Information

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