Clinicians’ attitude towards family planning and timing of diagnosis in autosomal dominant polycystic kidney disease
Publication Date
September 29, 2017
Authors
Stéphanie De Rechter, Jonathan Kringen, Peter Janssens, Max Christoph Liebau, et al
Volume
12
Issue
9
Pages
e0185779
DOI
https://dx.plos.org/10.1371/journal.pone.0185779
Publisher URL
http://journals.plos.org/plosone/article?id=10.1371%2Fjournal.pone.0185779
Scopus
85030150664
Mendeley
http://www.mendeley.com/research/clinicians-attitude-towards-family-planning-timing-diagnosis-autosomal-dominant-polycystic-kidney-di
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Mendeley | Further Information

{"title"=>"Clinicians' attitude towards family planning and timing of diagnosis in autosomal dominant polycystic kidney disease", "type"=>"journal", "authors"=>[{"first_name"=>"Stéphanie", "last_name"=>"De Rechter", "scopus_author_id"=>"56455331000"}, {"first_name"=>"Jonathan", "last_name"=>"Kringen", "scopus_author_id"=>"57056295200"}, {"first_name"=>"Peter", "last_name"=>"Janssens", "scopus_author_id"=>"57194010721"}, {"first_name"=>"Max Christoph", "last_name"=>"Liebau", "scopus_author_id"=>"12801760000"}, {"first_name"=>"Koenraad", "last_name"=>"Devriendt", "scopus_author_id"=>"7101636937"}, {"first_name"=>"Elena", "last_name"=>"Levtchenko", "scopus_author_id"=>"6701308902"}, {"first_name"=>"Carsten", "last_name"=>"Bergmann", "scopus_author_id"=>"7102135259"}, {"first_name"=>"François", "last_name"=>"Jouret", "scopus_author_id"=>"6506502657"}, {"first_name"=>"Bert", "last_name"=>"Bammens", "scopus_author_id"=>"6506826239"}, {"first_name"=>"Pascal", "last_name"=>"Borry", "scopus_author_id"=>"56998959900"}, {"first_name"=>"Franz", "last_name"=>"Schaefer", "scopus_author_id"=>"34572934300"}, {"first_name"=>"Djalila", "last_name"=>"Mekahli", "scopus_author_id"=>"26321132300"}], "year"=>2017, "source"=>"PLoS ONE", "identifiers"=>{"issn"=>"19326203", "scopus"=>"2-s2.0-85030150664", "sgr"=>"85030150664", "pui"=>"618502059", "isbn"=>"1111111111", "pmid"=>"28961265", "doi"=>"10.1371/journal.pone.0185779"}, "id"=>"1d145111-992e-3790-9228-01f3db8c6d71", "abstract"=>"Several ethical aspects in the management of Autosomal Dominant Polycystic Kidney Dis-ease (ADPKD) are still controversial, including family planning and testing for disease pres-ence in at-risk individuals. We performed an online survey aiming to assess the opinion and current clinical practice of European pediatric and adult nephrologists, as well as geneticists. A total of 410 clinicians (53% male, mean (SD) age of 48 (10) years) responded, including 216 pediatric nephrologists, 151 adult nephrologists, and 43 clinical geneticists. While the 3 groups agreed to encourage clinical testing in asymptomatic ADPKD minors and adults, only geneticists would recommend genetic testing in asymptomatic at-risk adults (P<0.001). Statistically significant disagreement between disciplines was observed regarding the ethi-cal justification of prenatal genetic diagnosis, termination of pregnancy and pre-implantation genetic diagnosis (PGD) for ADPKD. Particularly, PGD is ethically justified according to geneticists (4.48 (1.63)), whereas pediatric (3.08 (1.78); P<0.001) and adult nephrologists (3.66 (1.88); P<0.05) appeared to be less convinced. Our survey suggests that most clini-cians support clinical testing of at-risk minors and adults in ADPKD families. However, there is no agreement for genetic testing in asymptomatic offspring and for family planning, includ-ing PGD. The present data highlight the need for a consensus among clinicians, to avoid that ADPKD families are being given conflicting information.", "link"=>"http://www.mendeley.com/research/clinicians-attitude-towards-family-planning-timing-diagnosis-autosomal-dominant-polycystic-kidney-di", "reader_count"=>10, "reader_count_by_academic_status"=>{"Professor > Associate Professor"=>1, "Researcher"=>3, "Student > Ph. D. Student"=>2, "Student > Master"=>3, "Student > Bachelor"=>1}, "reader_count_by_user_role"=>{"Professor > Associate Professor"=>1, "Researcher"=>3, "Student > Ph. D. Student"=>2, "Student > Master"=>3, "Student > Bachelor"=>1}, "reader_count_by_subject_area"=>{"Unspecified"=>1, "Medicine and Dentistry"=>5, "Agricultural and Biological Sciences"=>2, "Social Sciences"=>1, "Decision Sciences"=>1}, "reader_count_by_subdiscipline"=>{"Medicine and Dentistry"=>{"Medicine and Dentistry"=>5}, "Social Sciences"=>{"Social Sciences"=>1}, "Decision Sciences"=>{"Decision Sciences"=>1}, "Agricultural and Biological Sciences"=>{"Agricultural and Biological Sciences"=>2}, "Unspecified"=>{"Unspecified"=>1}}, "group_count"=>0}

Scopus | Further Information

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